Here’s my long answer to the simple question that most conversations start with.
Tag: EDS
Ehler Danlos Syndrome Awareness
Raising awareness is incredibly important for me. I have encountered doctor after doctor who has either never heard of Ehlers Danlos syndrome, or whose entire knowledge of it is that it’s a connective tissue disorder. I’d always known…
Living with Chronic Pain
What you can’t see in this photo is how much pain I’m in. I’m currently sitting on a coach to travel home, and my hip pain is enough that I want to cry. The trip has only started, and I have three hours to go…